My heart breaks for the parents I work with every single day. People often ask me “How do you work with kids with special needs? Don’t you feel sorry for them?” and my answer is almost always “no”. And I don’t. These kids are some of the purest people you’ll ever interact with. They have the biggest hearts, they’re happy, they’re content, they’re pleased by the smallest of things. If I’m having a bad day, just one smile, hug, milestone achieved, turns it around. And this is not to glorify anyone with any kind of developmental disorder, behavioral or learning difficulty, because it’s not all rainbows and sunshine (it’s actually very far from that).
But the struggles their parents go through every. single. day. to get their kid to be accepted in society, tolerated in social settings, admitted in schools, able to participate in mundane day-to-day activities that we all take for granted is beyond me. These parents have quite literally dedicated their entire lives to their child, yet no matter what they do, it’s not good enough for society.
I’ve seen parents move countries to get better services for their child, I’ve seen some drive from different cities that are 2 hours away (that’s 4 hours total) just for their child to attend a 2-hour session, give up on their passion and careers, spend way more than their means, and exhaust every single path that might have them see their child 1% better than they what they currently are.
Just in this last week I have had to console 3 different parents (both mothers and fathers) who have come into my office crying as they are at a loss as to what to do with their child. They live and exist to see their child do better. Yet no matter what they do, again it’s not good enough.
So please, be kind. Think twice before you throw a judgement on a parent who’s trying their best. Try to understand, instead of react. These parents don’t choose to have a child who can’t speak, a child who’s aggressive or a child that functions many many years behind their actual age. If you see a child throwing a fit on the supermarket floor, it’s not that the parents have failed in parenting them. It’s very likely that they are struggling with something. And parents are not to blame for that. It’s bound to happen to any of us and at the end of the day, we’re all trying our best :)
Nardeen Massoud BCBA
Data-driven behavior analyst with an interest in improving the quality of life of children and adole
27/12/2023
I got the chance to do this podcast episode on self-care and hygiene in individuals with autism starting from a young age all the way to early adulthood. Check it out!
The Ana Huna podcast is tailored specifically to parents to raise awareness and simplify a wide range of topics in Arabic.
جالي الفرصة لعمل بودكاست علي موضوع رعاية الذات و النظافة الشخصية في أطفال طيف التوحد بدءا من السن المبكر حتي مرحلة البلوغ و فيما بعد. اتمني يبقي مفيد
تم تصميم بودكاست أنا هنا مخصوص للأهالي للوعي و تبسيط مواضيع مختلفة باللغة العربية
أنا هنا مع ناردين مسعود - محللة سلوك معتمدة من البورد الأمريكي BCBA - الحلقة الكاملة تابعونا على جميع منصّات البودكاست واليوتيوب linktr.ee/AnaHuna.podcast
Just sharing a glimpse of what I’ve been up to - had so much fun presenting to parents on the Essentials for Living (EFL) curriculum. Alex and I have worked so hard on developing this curriculum, going from only using it for 5 students to now over 30 students.
EFL is all about functional skills and we’ve seen so many students strive on it! Parents left asking for their child to be on it 🙌🏼
*note: not all curriculums are suitable for all students but EFL is definitely one to keep in your toolkit
27/11/2023
I had the pleasure of attending the 1st ABA conference in Egypt this past weekend and it exceeded my expectations! Apart from the fact that the presenters and topics were interesting and engaging, the conference was so well organised! It was so good getting to see Egypt’s BCBAs under one roof and watch the passion each and every one has for the field.
Thank you Menna M Mahrous for putting this together and I’m looking forward for many more in Egypt!
Happy weekend! I’d like to get to know you guys better! Are you a professional in the field, parent or other? What are things you would like to see on this page?
عايزة اتعرف عليكوا اكتر. هل إنتوا أخصائيين او اهل؟ ايه الحجات اللي حابين تشوفوها علي الصفحة دي؟
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