Downright Excellent

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Major new research on Down syndrome and healthcare has just been published in The Lancet journal as part of a new two-paper series.

The research highlights significant health inequalities faced by people with Down syndrome, while also making clear that many poorer outcomes are not inevitable. With the right healthcare, communication and support, people with Down syndrome can and do live healthier, fuller lives.

The research also recognises the challenges families face navigating fragmented services, poor communication and low expectations.

At a time when people with Down syndrome continue to experience shorter life expectancy and poorer health outcomes, this paper provides strong evidence for improving services and ensuring people with Down syndrome receive the dignity, respect and support they deserve throughout life.

Thanks to our Trustee Dr Liz Corcoran for her work on this research.

Here's the link to the research: https://www.thelancet.com/action/showPdf?pii=S2352-4642%2826%2900122-7

Interesting webinar coming up in June:

https://ndsccenter.org/resources/webinars/english/?fbclid=IwZnRzaAR_y0BleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEe-cut5YtSQGWdWhDld2Aprgo9LJdsdK8yXlqMUxq0IHdIAW64jfGvzorHX30_aem_YWdncwB6eR54TDcalLOdxB8lYTS7

Webinars : English : Webinars : Resources : National Down Syndrome Congress Regulation is the body's ability to take in just the right amount of information from the outside world and process it accordingly. It enables an individual to access higher-level executive function skills, attention to task, motor planning, feeding, articulation, and language skills. Many individua...

https://app.onlinesurveys.jisc.ac.uk/s/mmu/parent-carer-satisfaction-of-nhs-slt-provision-ds

app.onlinesurveys.jisc.ac.uk