Phaware Global Association

https://ow.ly/2icF50YrWsh

Three Generations. One Gene. A Rare Disease She Couldn’t Outrun.

Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease, Dawn learned it was genetic—and that she carried it. What followed was a lifetime of testing, fear, and impossible choices as she faced the reality that the same gene could shape her children’s futures. podcast ep 578

I'm Aware That I'm Rare: the phaware® podcast: Episode 578 - Dawn Ogden Three Generations. One Gene. A Rare Disease She Couldn’t Outrun. Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease, Dawn learned it was genetic—and that she carried it. What followed was a lif...

TODAY, join us live on Zoom from 9am-10 am PT | 12pm - pm ET, as we explore the digital tools and real-world approaches that are already available — and already making a difference, for PAH patients. https://us06web.zoom.us/j/85494455611?pwd=b2XyxEXJEIsuvl46iQYkTuTo8nRfKv.1
Meeting ID: 854 9445 5611
Passcode: 865516

TOMORROW, join us live on Zoom from 9am-10 am PT | 12pm - pm ET, as we explore the digital tools and real-world approaches that are already available — and already making a difference, for PAH patients. https://us06web.zoom.us/j/85494455611?pwd=b2XyxEXJEIsuvl46iQYkTuTo8nRfKv.1
Meeting ID: 854 9445 5611
Passcode: 865516

Tuesday 23 June, join us live on Zoom from 9am-10 am PT | 12pm - pm ET, as we explore the digital tools and real-world approaches that are already available — and already making a difference, for pulmonary arterial hypertension patients. From rehabilitating at home, self-managing your condition with an app and staying connected with your clinical team remotely, to accessing mental health support online: practical solutions for everyday life.
https://us06web.zoom.us/j/85494455611?pwd=b2XyxEXJEIsuvl46iQYkTuTo8nRfKv.1
Meeting ID: 854 9445 5611
Passcode: 865516

She Went Looking for Answers but built a Lifeline. Before Zoom and Facebook groups, PH patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. Phaware Global Association podcast ep 577 https://ow.ly/4zNA50ZcnFh

https://ow.ly/l95C50YrWq8

She Went Looking for Answers but built a Lifeline. Before Zoom and Facebook groups, PH patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. podcast ep 577

phawarepodcast.libsyn.com

Living with pulmonary hypertension comes with enough challenges, having the right tools can help make the journey a little easier. 💜

That's why we're excited to share that our partner, Phaware Global have launched the latest update to the HeartWorks app.

📲Built specifically for the PH community, HeartWorks helps users track symptoms, monitor their health, and stay engaged in their care journey—all in one place.

Have you tried the updated app yet? Tell us your favorite feature in the comments!

Get the Heart Works - phaware app in the Apple and Google Play app stores.
📲 Learn more and download the latest version here: https://www.phaware.global/heartworksapp